October 2017

Without rigorous diagnostic tests and robust  diagnostic criteria, patients living with CRPS have no opportunity to get treatment.

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Septemer 2017

Most patients see an average of 12 physicians before they are diagnosed. Often their CRPS has advanced to stage 3 by the time they are finally diagnosed. This has to change .

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August 2017

At the ER I was misdiagnosed as a malingerer because none of the practitioners had ever heard of or seen CRPS. They refused me basic healthcare.  The way all pain patients are treated is the civil rights catastrophe of our age.

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July 2017

My life changed when I got CRPS from a failed spinal surgery. It seems I often know more about my illness than most health care practitioners.

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June 2017

The Budapest Criteria is too stringent to capture all people suffering CRPS. None of my 300 patients suffering CRPS and getting treated for CRPS are actually meeting the criteria because physiological signs change over time. That means I won't get paid for the treatments or they won't get treated at all. If I could track my CRPS patients symptoms over time, then I could actually make the clinical diagnosis of CRPS. We need either new criteria or new procedures and tests to make a valid diagnosis.

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May 2017

CRPS is currently treatable during Stage 1. But most patients are not diagnosed until they are stage 3 where it is much more difficult to manage symptoms because changes to the brain have been made.

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